The ConnectCenter Information and Referral Line: A Lifeline for People with Vision Loss

Editor’s note: This post was written by Alan Lovell, Information and Referral Coordinator for the APH ConnectCenter. Alan often receives calls that are especially good examples of what we strive to do in the ConnectCenter and from time to time he’ll share them here on the blog. I receive calls to the APH ConnectCenter’s I&R … Continued

Remembering the Women in My Life

In honor of International Women’s Day, celebrated this year March 6-8, Deanna Quietwater Noriega, who has been blind since childhood, talks about the women in her life who have shaped who she is today. The theme this year is Educate. Enlighten. Empower. Deanna’s post embodies this theme as she discusses mentoring, self-advocacy, and overcoming adversity and opting “into life” as a whole person.  There … Continued

Diagnosed with Eye Disease I Couldn’t Spell, Pronounce or Find Online: Vogt Koyanagi Harada Syndrome

Editor’s note: In observance of Rare Disease Day on February 28, Empish Thomas, VisionAware Peer, has written  this post about her rare autoimmune condition characterized by chronic, bilateral uveitis. An image of the parts of the eye most affected is shown below. Getting the Diagnosis I am sure you have heard of common eye conditions like glaucoma, cataracts and diabetic retinopathy. You … Continued

Vision loss: It’s a Family Matter

by Sylvia Stinson-Perez, MSW., Director of Mississippi State University OIB-TAC Editor’s note: Please register for our webinar on March 10 at 2 p.m. eastern, “Vision Loss: It’s a Family Matter.” This panel discussion will give an overview of how families are impacted as their loved one experiences and adjusts to life with vision loss. Specific … Continued

A Black History Month Celebration of Leaders in the Blindness Field

Everyone knows Stevie Wonder and the late Ray Charles: exceptionally gifted, groundbreaking musicians who also happen to be both Black and blind. But many other Black Americans have shared their talents with the world – or are still doing so – often working to advance the field of blindness and create a more inclusive society.  The Black History Month 2021 theme is … Continued

Five Steps for Adjusting to Low Vision

Editor’s note: Please plan to join our webinar on February 18, “Living with Low Vision: Insider Perspectives.” VisionAware peers with low vision will share their experiences of living with loss at different times in their lives including how they coped with their diagnosis and adjusted to life with vision loss.   I guess the most surprising thing … Continued

Retinitis Pigmentosa: Two Stories One Message Part 2

Editor’s Note: February is Retinitis Pigmentosa (RP) Awareness Month. Be sure to read Retinitis Pigmentosa: Two Stories One Message Part 1 in our series. Denying the Diagnosis  As a young teenager, I seemed as normal as my friends; roller skating around the neighborhood, talking to girlfriends over the phone in quiet whispers about boys, badgering my brother … Continued

Sometimes Ya Just Never Know, Do You?–Introducing Sharon Hughey to the APH ConnectCenter Team

In the APH ConnectCenter we field all types of calls and questions.  They range from “how do I learn to cope with my blindness?”; to “what type of technology might work best to help me?”; to “how do I maintain my independence?”; to questions about careers and employment. When the phone rings, I’m reminded of a popular quote from the movie Forrest Gump. “…life is like … Continued

Retinitis Pigmentosa: Two Stories One Message Part 1

Did you know that Retinitis Pigmentosa (RP) is the most common inherited disease of the retina? There is much research being carried out worldwide to find a cure to this condition which affects one in every 4000 people in the United States, and around one in 5000 worldwide. In this 2-part series for RP Awareness Month in February, fellow … Continued

Netflix and Chill? Making Home Entertainment More Accessible

Technology Enhances Date Night At Home This Valentine’s Day – or any date night in the near future – many people won’t be going out for fancy dinners or to the movies, given the risks and restrictions related to COVID-19. But there’s no reason not to plan a special celebration at home enjoying your favorite movie or TV … Continued

The Ordinary Life of a Visually Impaired Person

by Melanie Peskoe Editor’s note: Please plan to join our webinar on February 18, “Living with Low Vision: Insider Perspectives.” VisionAware peers with low vision will share their experiences of living with loss at different times in their lives including how they coped with their diagnosis and adjusted to life with vision loss.   I’d say all … Continued